Thursday, April 19, 2007
Good morning... Not really.
Posted by XO-JK at 11:40 AM 1 comments
Sunday, April 15, 2007
Language...
I am a person with an autism spectrum disorder...
The important part of that is that i am a PERSON. I work very hard to advocate for the rights of people with disabilities, including myself. In the last 9 months i have had the priveledge to speak with my state senator and his staff as well as my representatives staff. I have been able to share my story and hopes for equality with congressmens offices and county commissioners. I have done work towards promoting the education of first responders regarding best practice methods for working with individuals with autism. I have been lucky enough to hear dozens of the countries leading experts on disability rights.
and i have yet to meet one individual that does not prefer person first language when describing themselves or their child.
what alarms me in all this is that i have recently encountered another blog. Autism Diva that has no respect for this concept. I do acknowledge that people first language is a choice. but when i commented on her blog about her use of reffering to the community as a whole as "autistic people" I was called overly sensitive. as well as presumptious, for presuming that disabled people care. Well i am a disabled person and i care.
on a group i am a member of the main title is "for people suffering from aspergers syndrome"... again here we are with the language. I am not suffering. There are days that are harder than others, and there are days that i drive my partner nuts simply being me. But this is all part of who i am.
Some refer to people first language as cumbersome and unneccasary, but i differ. If we want to be seen as people same as others we need to adjust how we allow ourselves to be labeled.
Language is a tricky thing. We speak freely and often but how much of the time do we think about what we are saying and how it sets a precident for how people view us or our situation.
today i challenge you to think before you speak... how does what you say set a precident?
Posted by XO-JK at 9:44 PM 0 comments
Monday, April 09, 2007
Playing favorites...
This is my beautiful neice Lavender... and thats why i'm writing today because i'm annoyed beyond beliefe... My estranged other sister has decided she is the favorite auntie and has started sending me vicious e-mails calling me a druggy and a drunk and a dike... yes a DIKE.... lol nice to know i'm a water feature... i prefer that to being called a dyke by some ignorant welfare queen. It pisses me off though cause i've worked so hard to be clean (3 1/2 years now) and i dont drink a lot (hell i'm still working on the 6 pack from st.patricks day)
I'm annoyed by all of this cause i believe that every aunt has the right to believe they are the favorite... and i'm sorry that i dont have more time to spend with my niece and nephew but lets me realistic, i have a demanding job and i go to school full time. But i see them every chance i get. Fact of the matter is what i am doing the rest of the time is building a life for myself... being a positive role model.
My nephew Tyreal has a disability and i spend a lot of my spare time lobbying for disability rights and funding. This is in part because of him but also because both my brother and I have autism spectrum disorders. But in the long run i think the impact i have on disability related legislation will have a much greater impact on my nephews life and well being than an afternoon watching sponge bob...
I guess the gist of this is that i hate ignorant people...
Posted by XO-JK at 10:35 AM 1 comments
Sunday, April 08, 2007
Dear Mr. President...
Posted by XO-JK at 9:52 AM 0 comments